Anxiety is an issue, as is tedium and the dread of utter dependence. At times she seems to be giving up; there is an overwhelming sense of too much pain, too much fear, too much sadness ~ that there is simply not enough pleasure left in the world to make the agony of living worth bearing. It is the death of hope. I understand. But I don't want to.
And yet, she makes the effort. She is, as ever, cute and charming in social situations, commanding attention no less today than in the full radiance of her youth. Pushing her down the health centercorridor, she is dwarfed by her oversized wheelchair and resembles nothing more than a diminutive apple-faced doll, and hospital personnel and strangers alike will stop to smile and exclaim, "Oh my, you are so cute!"
Sometimes, she turns to me and says, "Everyone keeps telling me that! It must be true." So it is.
In a therapy session, she is instructed to raise her arms and wave. She raises her arms straight out by her sides and flutters her long, bony fingers delicately in the air, concentrating intently. "I'm making butterfly fingers" she says. Mr. Hainsley, with whom she shares her group therapy laughs. "I'll bet you were something else when you were young," he says. She widens her eyes. "Ooo...well, you don't know the half of it."
In the rehab room, where eight other physical therapists are working with their clients Maxine, her caseworker, asks her to point to a schematic face on a paper indicating her level of pain. The faces range from number 1, a beaming smiley face to number 9, which is scowling ferociously, eyebrows furrowed and teeth bared.
"Well," she says, after consideration, "this is me," indicating the sweet Happy Face. "And this is...YOU!" She points to the angry, frowny one. Her timing is impeccable. The room erupts in laughter.
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